Save the Date!
YAYA FOUNDATION FAMILY & SCIENTIFIC CONFERENCE
Accelerating Discovery and Driving Hope for 4H Leukodystrophy
October 13-15, 2023
Children’s Hospital of Philadelphia
Please join us
The Yaya Foundation is proud to announce its upcoming Yaya Foundation Family & Scientific Conference, October 13-15, 2023 in Philadelphia.
Core components of this conference will include research and scientific updates; care, support management and resources for families; and an opportunity to bring our family, clinician, researchers, and partners together to enhance our community.
The benefits of attending this free, virtual conference include:
- Receiving expert care guidance from clinicians who have cared for patients with 4H Leukodystrophy
- The ability to participate in Q&A with the clinicians
- Multiple opportunities to connect with other families
We look forward to bringing individuals and families affected by 4H together with leading specialty clinicians who have cared for 4H patients. The conference agenda will also allow opportunities for the 4H community to connect.
Please register today! We think this will be an amazing event!
KEYNOTE SPEAKERS
Agenda
Wednesday, October 11
Clinic Visits, CHOP
Thursday, October 12
Clinic Visits, CHOP
Friday, October 13
Clinic Visits, CHOP
Family/Researcher Meetings
8:00am-4:00pm ET
Welcome & Conference Overview
- Supportive Care Overview
- Disease Management Specialties
- Research Updates for Families
- Potential Application of Novel Therapies for Leukodystrophies
Family/Researcher Dinner
7:00pm ET
Saturday, October 14
Researcher Meetings
8:00am-12:00pm ET
- Natural History
- Structure & Function
- Disease Models
- Gene Therapy
Family Discussion Sessions
8:00am-12:00pm ET
- Variety of Social Support Topics
Family/Researcher Lunch
Afternoon Optional Family Activity or Free-time
Evening Social Reception
Children's Hospital of Philadelphia
Children's Hospital of Philadelphia (CHOP) is the nation's first hospital devoted exclusively to the care of children. Since our start in 1855, CHOP has been the birthplace for countless breakthroughs and dramatic firsts in pediatric medicine. .
Hotel -- The Study at University City
Inspired by the architecture of Philadelphia and the skills of local craftspeople, Study Hotels is pleased to offer its second property in the heart of vibrant University City. The Study at University City sets new expectations for comfort and service. Our hotel near Drexel University and UPenn brings energy to the neighborhood as a unique destination where visitors, culture seekers, professors, students, families and locals intersect to enjoy approachable hospitality and a comfortable space to relax and renew. Our team is passionately dedicated to providing warm, attentive and intuitive service, addressing each visitor's individual needs with knowledge and inspiration that will enhance and personalize the guest experience.
Accessibility
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