Save the Date!
Accelerating Discovery and Driving Hope for 4H Leukodystrophy

October 13-15, 2023

Children’s Hospital of Philadelphia

Please join us

The Yaya Foundation is proud to announce its upcoming Yaya Foundation Family & Scientific Conference, October 13-15, 2023 in Philadelphia.

Core components of this conference will include research and scientific updates; care, support management and resources for families; and an opportunity to bring our family, clinician, researchers, and partners together to enhance our community.

The benefits of attending this free, virtual conference include:

  • Receiving expert care guidance from clinicians who have cared for patients with 4H Leukodystrophy
  • The ability to participate in Q&A with the clinicians
  • Multiple opportunities to connect with other families

We look forward to bringing individuals and families affected by 4H together with leading specialty clinicians who have cared for 4H patients. The conference agenda will also allow opportunities for the 4H community to connect.

Please register today! We think this will be an amazing event!



Wednesday, October 11
Clinic Visits, CHOP

Thursday, October 12
Clinic Visits, CHOP

Friday, October 13
Clinic Visits, CHOP

Family/Researcher Meetings
8:00am-4:00pm ET

Welcome & Conference Overview

  • Supportive Care Overview
  • Disease Management Specialties
  • Research Updates for Families
  • Potential Application of Novel Therapies for Leukodystrophies

Family/Researcher Dinner
7:00pm ET

Saturday, October 14

Researcher Meetings
8:00am-12:00pm ET 

  • Natural History
  • Structure & Function
  • Disease Models
  • Gene Therapy

Family Discussion Sessions
8:00am-12:00pm ET

  • Variety of Social Support Topics

Family/Researcher Lunch

Afternoon Optional Family Activity or Free-time

Evening Social Reception

Children's Hospital of Philadelphia

Children's Hospital of Philadelphia (CHOP) is the nation's first hospital devoted exclusively to the care of children. Since our start in 1855, CHOP has been the birthplace for countless breakthroughs and dramatic firsts in pediatric medicine. .

Hotel -- The Study at University City

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