Our Work

The Yaya Foundation provides hope for children and families affected by 4H Leukodystrophy in two key ways—by accelerating the discovery of therapies through research and providing education and emotional support for families.

Acceleration of Therapy Discovery

We’re working to speed progress toward therapies and a cure through an ambitious research strategy, including the mobilization of the best and brightest researchers through the 4H Leukodystrophy Collaborative Research Network (#4HLCN), an actionable Data Collection Program, and grants funding the most promising, cutting edge projects.

Learn more about our research strategy

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Education and Emotional Support for Families

With the Yaya Foundation, no one has to face 4H Leukodystrophy alone. We’re with you every step of the way with reliable information, valuable resources and emotional support from others who understand.

Connect with the Yaya Foundation

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Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.