Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4h leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

Donate

News & Stories

October 21, 2021

Since its founding in 2018, The Yaya Foundation has been the first ever organization dedicated to fighting for children and families affected by 4H Leukodystrophy. We are driven by the dream that one day, every person affected by 4H Leukodystrophy will have the chance to live a long, healthy life. We won’t stop until we…

October 12, 2021

On a cold and blustery Chicago morning, I received a phone call that would change the fate of my family forever. Just a few days earlier, my son Joshua had undergone an MRI scan. While I considered the possible results, I had never thought the diagnosis could be something so terrible. A diagnosis of a…

October 12, 2021

Kora has always been a gift to her parents, starting from the moment of her arrival on December 25th. In her first few weeks of life, Kora struggled with acid reflux and major spit up. We lived by the five Ss (Swaddle, Side-stomach position, Shush, Swing, Suck) to soothe her somewhat cranky nature. Thankfully, Kora…