Accelerating discovery and driving hope for

4h leukodystrophy

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Oct 13-15

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Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

November 20, 2023

Yaya Foundation is happy to announce that presentations from the 2023 Family & Scientific Conference are now live on our youtube page! You can access the full playlist below and…

November 20, 2023

In October 2023, the Yaya Foundation hosted its 2023 Family & Scientific Conference, which brought together more than 100 families, researchers, and clinicians in our 4H Leukodystrophy Community. In this…

November 20, 2023

In October 2023, the Yaya Foundation hosted its 2023 Family & Scientific Conference, which brought together more than 100 families, researchers, and clinicians in our 4H Leukodystrophy Community. In this…