Accelerating discovery and driving hope for

4h leukodystrophy

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June 25, 2022

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Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

May 25, 2023

The Yaya Foundation Awards Children’s Hospital of Philadelphia Grant for Biomarker Research- Related to POLR3-Related Leukodystrophy The Yaya Foundation for 4H Leukodystrophy (4HL) recently awarded a grant of nearly $50,000…

March 13, 2023

Ben joined the Yaya Foundation in March 2023, bringing 15 years of experience dedicated to non-profit leadership and development; equipping organizations to maximize their mission impact. Ben is a strategic…

January 5, 2023

Meet Gabe! January 2023 Happy New Year from Yaya Foundation for 4H Leukodystrophy! One of our goals for 2023 is to highlight the voices of our community each month. We…