Accelerating discovery and driving hope for

4h leukodystrophy

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June 25, 2022

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Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

November 27, 2022

This handsome guy hails from the United Kingdom and was diagnosed with 4H Leukodystrophy (4HL) less than one year ago. Hear from his amazing mom, Kerrie, about their journey with…

November 21, 2022

Looking back on 2022, I am so proud of all the Yaya Foundation has accomplished. We’ve enabled critical breakthroughs in 4H Leukodystrophy (4HL) research through our 4HL Collaboration Network initiative,…

November 20, 2022

On November 13th, 2022, the Yaya Foundation invited a very special guest to join the #4HLFamilies call – Dr. Geneviève Bernard of McGill University. Dr. Bernard is one of the…