Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4h leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

November 25, 2021

The latest #4HLFamilies call hosted by the Foundation included special guest and leading 4H Leukodystrophy expert, Dr. Genevieve Bernard. Following brief introductions by everyone, Dr. Bernard helped welcome more than twenty families to the special discussion on current 4H research, possible 4H research pathways for the future, and the spectrum of 4H phenotypes. Plenty of…

November 11, 2021

Dear Yaya Foundation Family & Friends, 2021 has been a year of action fueled by hope – your hope, and our hope that one day, every person with 4H Leukodystrophy will have the chance to live a long, healthy life. This year, the Yaya Foundation put hope in motion and invested in bringing researchers together…

October 29, 2021

On October 8, 2021, the Yaya Foundation hosted another installment of our global Scientific Seminar Series. This time, Dr. Vivi Heine presented “Patient iPSC models to study neuronal changes in 4H Syndrome”.  Approximately 40 researchers from the US, Canada, UK, Germany and Poland attended the webinar and participated in a lively discussion. Dr. Vivi Heine…