Accelerating discovery and driving hope for

4h leukodystrophy

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Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

September 19, 2023

Dr. Camille Wilson and Dr. Josh Bonkowsky joined the #4HL Family Call this month. Dr. Wilson talked about neuropsychology and how it can be an important and helpful tool in…

August 17, 2023

Yaya Foundation Executive Director Ben Smith gives his thoughts after spending 90+ days with the organization. Read on to learn more about his experiences, insights, and next steps for the…

May 25, 2023

The Yaya Foundation Awards Children’s Hospital of Philadelphia Grant for Biomarker Research- Related to POLR3-Related Leukodystrophy The Yaya Foundation for 4H Leukodystrophy (4HL) recently awarded a grant of nearly $50,000…