Accelerating discovery and driving hope for

4h leukodystrophy

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June 25, 2022

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Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

September 15, 2022

In session 5 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Sam Daniel of McGill University discusses dysphagia and drooling with families and individuals affected…

September 7, 2022

Following two highly impactful years at the Yaya Foundation, it is bittersweet to share that Christina Butterworth is transitioning from her position as the Yaya Foundation’s Executive Director. Unexpected life…