Accelerating discovery and driving hope for

4h leukodystrophy

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June 25, 2022

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Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Accelerating discovery and driving hope for

4H Leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

January 5, 2023

Meet Gabe! January 2023 Happy New Year from Yaya Foundation for 4H Leukodystrophy! One of our goals for 2023 is to highlight the voices of our community each month. We…

December 7, 2022

This year we completed (Phase 1) ​the first half of our first ever 4H Leukodystrophy Collaboration Network-prioritized research initiative, focused on disease model and gene therapy development. The project, which…

November 27, 2022

This handsome guy hails from the United Kingdom and was diagnosed with 4H Leukodystrophy (4HL) less than one year ago. Hear from his amazing mom, Kerrie, about their journey with…