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June 2022

Fri 17 Jun

Ride for a Cure

Florida United States

Ride for A Cure: Florida Motorcycle Ride Fundraiser Grandfather Jim St. John is taking to the road on his motorcycle to raise awareness for 4H Leukodystrophy in honor of his granddaughters, Jamie and Layla. A message from Jim about his Ride for a Cure: Here's your chance to finally tell me where to go! This time you will be choosing my stops for me. All amounts of donations welcomed and appreciated. With a minimum donation of $100, I will go…

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July 2022

Sun 17 Jul

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…

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Sat 30 Jul

Fore for 4H Golf Event

Creekwood Golf Course, 9691 Reed Road
Columbia Station, Ohio 44028 United States
+ Google Map

In its seventh year, Fore for 4H is a great day with friends playing golf, and enjoying live entertainment, BBQ, and raffles!

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September 2022

Sun 18 Sep

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…

Find out more »

November 2022

Sun 13 Nov

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…

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Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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