Ride for A Cure: Florida Motorcycle Ride Fundraiser Grandfather Jim St. John is taking to the road on his motorcycle to raise awareness for 4H Leukodystrophy in honor of his granddaughters, Jamie and Layla. A message from Jim about his Ride for a Cure: Here's your chance to finally tell me where to go! This time you will be choosing my stops for me. All amounts of donations welcomed and appreciated. With a minimum donation of $100, I will go…
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The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…
Find out more »In its seventh year, Fore for 4H is a great day with friends playing golf, and enjoying live entertainment, BBQ, and raffles!
Find out more »The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…
Find out more »The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…
Find out more »In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.
Learn More >>We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.
So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.
We won’t stop until we find a treatment and, ultimately, a cure.
Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.
