Help us fight for children & families affected by

Don’t Just Hope for a Cure. Join the Fight for One.

The work of the Yaya Foundation is powered by you.
From donations to fundraising to advocating with your voice, your support fuels our mission.
Please join us in this fight with your gift today.

The Yaya Foundation for 4H Leukodystrophy
5100 West 36th Street, #16404
St. Louis Park, MN 55416-9998

501(c)(3) EIN: 82-3888108

To demonstrate a commitment to transparency,
and to make it easier for those seeking information about Yaya Foundation,
Please find our IRS Form 990 here.

Yaya Foundation can also accept domestic and international wire transfers.
If interested, please email for specific instructions.

Other ways make a difference

  • Employee Matching

    Matching gifts and workplace giving programs are two ways to increase the impact of your donation to Yaya Foundation. Check with your HR group for how to get started.

  • Donate Stock

    We accept donations of appreciated, publicly traded stocks. Contact us to learn how you can donate shares (stocks, mutual funds or other securities) by electronic transfer.

  • Fundraise

    Many of our families and supporters have turned their hobbies and interests into meaningful fundraising for the Yaya Foundation.

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation