September 7, 2022

Following two highly impactful years at the Yaya Foundation, it is bittersweet to share that Christina Butterworth is transitioning from her position as the Yaya Foundation’s Executive Director. Unexpected life…

August 30, 2022

In this #4HLFamilies call, 3 parents of children affected by 4H (POLR3-Related) Leukodystrophy share their children’s and families’ stories. They discuss the stories of their diagnoses, challenges and successes, and…

June 30, 2022

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…