Category: News

September 7, 2022

Following two highly impactful years at the Yaya Foundation, it is bittersweet to share that Christina Butterworth is transitioning from her position as the Yaya Foundation’s Executive Director. Unexpected life…

February 7, 2022

On February 6th, the Yaya Foundation hosted the first of six Zoom Hangouts for #4HLFamilies in 2022! In these bi-monthly calls, anyone and everyone impacted by 4H Leukodystrophy is invited…

May 26, 2021

On May 16th, the Yaya Foundation invited a very special guest to join the #4HLFamilies call – Dr. Nicole Wolf of the Amsterdam Leukodystrophy Center and the Amsterdam University Medical Center. Dr. Wolf is one of the world’s leading clinician scientists of 4H/POLR3-related Leukodystrophy.