Dear Families, Friends, and Partners
Looking back on 2022, I am so proud of all the Yaya Foundation has accomplished. We’ve enabled critical breakthroughs in 4H Leukodystrophy (4HL) research through our 4HL Collaboration Network initiative, collected data that will help us prepare for future clinical trials, and continued to grow our research and clinical network.
One of the greatest parts of the year was being able to come together as a community, both virtually and in person (!). We hosted the largest convening in the history of our diagnosis focused on improving clinical care for people affected by 4HL and got together in Illinois for a session dedicated to research updates. For many of us, it was the first time meeting each other; for others, it was a time to see the people they trust most on this 4HL journey.
All of this fills us with HOPE for what lies ahead. I am inspired by our community and know that, working together, we can change the world and improve outcomes for people affected by 4HL.
Thank you for your continued support this year and for being a part of our community.
Yaya Foundation Co-Founder, Board President and Yaya’s Father