On-Demand Webinar: The Diagnostic Odyssey For Individuals With Leukodystrophies.
CE Credits Are Available
This free, on-demand webinar, co-designed by Yaya Foundation and provided by Optum Health Education, will explore recent advances in the diagnosis and treatment of leukodystrophies, including current clinical trials. It will also share insights and perspectives from individuals and their family/caregiver(s) and provide strategies to support their well-being.
A disease is considered “rare” if it affects fewer than 200,000 individuals in the US. Uncovering the genetic roots of rare diseases and using those insights to develop new treatments is an ongoing process. Leukodystrophies are a group of rare genetic disorders that affect the central nervous system (CNS). Diagnosis is often delayed due to complex, indistinct symptoms, but recently emerging diagnostic tools and therapies are on the horizon. Living with a rare disease impacts individuals and their family/caregivers both physically and mentally.
Description – This webinar explores recent advances in the diagnosis and treatment of general leukodystrophies, including current clinical trials. It will also share insights and perspectives from individuals and their family/caregiver(s) and provide strategies to support their well-being.
Audience – This activity is designed to meet the educational needs of case managers, counselors, nurses, nurse practitioners, pharmacists, pharmacy technicians, physicians, PAs, psychologists, social workers, therapists and other health care professionals (HCPs) who care for individuals with leukodystrophies.
Accreditation Statement – In support of improving patient care, this activity has been planned and implemented by Optum Health Education and UnitedHealthcare. Optum Health Education is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE) and the American Nurses Credentialing Center (ANCC), to provide continuing education for the health care team.
- 1.00 AAPC – Coders
- 1.00 ACPE – Pharmacists
- 1.00 ACPE – Pharmacy Technicians
- 1.00 AMA – Physicians
- 1.00 ANCC – Nurses
- 1.00 APA – Psychologists
- 1.00 Attendance – General Attendance
- 1.00 CCMC – General – Case Managers