February 7, 2022

On February 6th, the Yaya Foundation hosted the first of six Zoom Hangouts for #4HLFamilies in 2022! In these bi-monthly calls, anyone and everyone impacted by 4H Leukodystrophy is invited…

October 12, 2021

On a cold and blustery Chicago morning, I received a phone call that would change the fate of my family forever. Just a few days earlier, my son Joshua had…

October 12, 2021

Kora has always been a gift to her parents, starting from the moment of her arrival on December 25th. In her first few weeks of life, Kora struggled with acid…

October 12, 2021

May 17th, 2001 was a day that changed my life forever. Julia Marie Novak was born at 6:20pm, weighing seven pounds and eleven ounces. I remember thinking to myself that…

October 12, 2021

Learning To Soar With My Superhero Our story pivots around one precise moment—a phone call one afternoon in May 2016 almost four years ago. Every life event before, and every…