Yaya Foundation

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians,…

In the Opening of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Ron Garber, Yaya’s dad and foundation co-founder, reflects on his daughter’s diagnosis, the journey of…

In the Closing of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Executive Director Christina Butterworth discusses the day’s highlights and upcoming engagement opportunities with families and…

In session 8 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Gaeton Filion discusses a combination of rehabilitation and adaptation with families and individuals affected…

In session 10 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Annie Marie Sbrocchi of McGill University Health Centre discusses bone health with families and…

In session 6 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Marie-Emmanuelle Dilenge of McGill University discusses Spasticity Definition, Presentation, and Treatment with families and…

In session 4 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Keith Van Haren of Stanford discusses supportive therapies with families and individuals affected by…

In session 12 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Roberta La Piana discusses transfer from pediatric to adult care with families and individuals…

In session 7 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Inge Meijer discusses treatment of movement disorders with families and individuals affected by 4H…

In session 4 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Dr. Nicole Wolf of Amsterdam University Medical Center discusses what we can learn from other…

In session 2 of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, 4H expert Dr. Genevieve Bernard of McGill University Health Centre discusses POLR3-related Leukodystrophies with families…