June 17, 2021

Asher is a beautiful, 7-year-old boy living with 4H Leukodystrophy, POLR3B type. His family, including an older sister, were thrilled to welcome him as a healthy, full-term baby. He was…

June 2, 2021

Dr Nicole Wolf, 4H Leukodystrophy specialist and rare disease expert, speaks about data collection and patient registries: what they are used for, how they benefit patients, how data are collected…

May 29, 2021

Long before I had ever heard of learning disabilities, attention deficit disorder, language impairments and emotional handicaps, I believed that young children learned what their parents taught them or what…

May 26, 2021

On May 16th, the Yaya Foundation invited a very special guest to join the #4HLFamilies call – Dr. Nicole Wolf of the Amsterdam Leukodystrophy Center and the Amsterdam University Medical Center. Dr. Wolf is one of the world’s leading clinician scientists of 4H/POLR3-related Leukodystrophy.

April 30, 2021

Dr Alessandro Vannini about the importance of collaboration at the Yaya Foundation for Leukodystrophy collaborative network seminar on April 15, 2021. <iframe width=”560″ height=”315″ src=”https://www.youtube.com/embed/KvaJlD_XJME” title=”YouTube video player” frameborder=”0″ allow=”accelerometer;…

January 12, 2021

Meet Courtney and Nick and their two beautiful daughters, Jamie and Layla. In 2019, both Jamie and Layla were diagnosed with 4H Leukodystrophy (POLR3A). Jamie Jamie was born in 2016…