#4HLFamilies Call – September 19, 2021
In this #4HLFamilies call, a brief overview of the Yaya Foundation was shared as well as the following updates:
– Data Collection Program overview & update; 45 families from 8 countries have participated!
– Gene Therapy project announcement; Drs Bernard & Gao have kicked off a mouse model proof of concept
– 4H Conference; early planning underway for an April 2022 Family & Scientific Conference in Montreal
– Family resources available; disease overview, letter to providers, support for family fundraisers, bi-monthly #4HLFamilies calls & more