#4HLFamilies Call – September 19, 2021

In this #4HLFamilies call, a brief overview of the Yaya Foundation was shared as well as the following updates:
– Data Collection Program overview & update; 45 families from 8 countries have participated!
– Gene Therapy project announcement; Drs Bernard & Gao have kicked off a mouse model proof of concept
– 4H Conference; early planning underway for an April 2022 Family & Scientific Conference in Montreal
– Family resources available; disease overview, letter to providers, support for family fundraisers, bi-monthly #4HLFamilies calls & more

Posted Under: Video

4H Leukodystrophy
Research

In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.

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Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

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Yaya Foundation

#4HLFamilies Call – September 19, 2021

Posted Under: Video

4H Leukodystrophy Research

4H Leukodystrophy
Research