Data Collection Program Endorsement from Dr Nicole Wolf
Dr Nicole Wolf, 4H Leukodystrophy specialist and rare disease expert, stresses the importance of data collection, also called patient registries, and how critical it is for patients, caregivers, doctors and researchers to engage with them.
You can participate in the 4H Leukodystrophy by visiting the Data Collection Program here – https://4hleukodystrophy.rare-x.org/
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