Data Collection Project

Dr Nicole Wolf, 4H Leukodystrophy specialist and rare disease expert, speaks about data collection and patient registries: what they are used for, how they benefit patients, how data are collected and why collaboration is so important.

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4H Leukodystrophy
Research

In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.

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Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

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Yaya Foundation

Data Collection Project

Posted Under: Video

4H Leukodystrophy Research

4H Leukodystrophy
Research