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Zoom Hangout for #4HLFamilies

July 17, 2022 @ 1:00 pm - 2:00 pm

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy.

Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org.

The #4HLFamilies Zoom Hangouts will be held on the following Sundays at 2:00 pm ET / 11:00 am PT:

  • February 6th
  • March 27th
  • May 22nd
  • July 17th
  • September 18th
  • November 13th

Registration is required and a Zoom link will be emailed to you following registration.

Please send any questions to info@yayafoundation4hl.org. We look forward to seeing you!

Register To Attend


July 17, 2022
1:00 pm - 2:00 pm


Via Zoom Link
Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.