We’re Hiring – Advancement Advisor

The Yaya Foundation is hiring an Advancement Advisor who is a self-starter who crafts creative fundraising solutions
and opens doors to new donor relationships.


Advancement Advisor

As the Foundation’s Advancement Advisor you are responsible for long and short term fundraising goals from individual
donors and institutions/corporations, all of which allow us to achieve our mission and maximize our impact in
the community. The Advancement Advisor creates the fundraising strategy with Executive Director
oversight and Co-Founder support and then plans and organizes supporting fundraising activities, manages
the development budget and assembles the team to raise those funds. The Advancement Advisor has primary
responsibility for donor identification, cultivation, and solicitation.


As our designer of development strategies, you get to:

  • Develop and execute the strategic fundraising plan to meet short- and long-term goals with
    development targets increasing each year
  • Help our major donors accomplish their philanthropic goals and ambitions through a relationship with
    our organization
  • Generate new ideas that increase revenue and donor loyalty
  • Report on program progress to the Executive Director and the board
  • Initiate communications plan and materials to support Advancement efforts


As our organizer of development activities, you get to:

  • Create multitier stewardship plan to levels of giving to maintain long-term relationships with existing
    donors and identify, cultivate donor prospects
  • Leverage systems and build processes to track and cultivate donors and prospects, including our donor
    database and wealth screening tools
  • Make direct, face-to-face solicitations
  • Recruit, train, and support key volunteers – within our board and affected community – to assist in
    advancement efforts
  • Identify, and write grants that align to the Foundation’s mission to achieve the annual development


This job might be for you if:

  • You have atleast 5 successful years of experience in nonprofit fundraising focused on major donor
    giving, individual giving campaigns, peer to peer fundraising, and grant writing/awards programs.
  • You dream of transforming purposeful, startup organizations into successful ones, good ones into high
    performing ones, and you know how to actualize your aspirations.
  • You are a natural at building relationships with others. You are easily and authentically able to connect
    with individuals and build alliances among wide range of players. You can bring in allies across diverse
    communities including leveraging your existing philanthropic network.
  • You are results-oriented with a track record of achievement and a bias for producing results (rather
    than getting immersed in process). You find ways to persevere despite obstacles.
  • You have strong project management skills, staying on top of multiple projects, planning backwards,
    anticipating obstacles, identifying, and involving stakeholders appropriately.
  • You are an enthusiastic leader capable of managing diverse partners and teams to reach a common
    goal. Initiating, organizing, and completing projects is right up your alley. You know how to make timely,
    effective, and ethical decisions. You embody the entrepreneurial spirit.
  • You actively and constantly listen to all constituents, focus especially on donor needs and know how to
    identify mutual benefits. Your communication is excellent and compels audiences through writing and


About the Yaya Foundation

We are driven by the dream that one day, every person with 4H Leukodystrophy will have the chance to live a
long, healthy life.

So the Yaya Foundation fights for these people and their families by acting as a catalyst and a connector—
bringing researchers together to accelerate the pace of discovery, while connecting families with vital
educational resources, expert care, and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

The Yaya Foundation is the only advocacy group in the world fighting for people affected by this rare, inherited,
neurodegenerative disease. In just three short years, the Foundation has:

  • been awarded a prestigious Rare As One grant from the Chan Zuckerberg Initiative,
  • hired a professional team to guide our strategy and innovation research agenda, as well as run day-today operations bringing us out of start-up mode,
  • launched a data collection program to advance what we know about 4H Leukodystrophy; engaging
    over 50 families from 11 countries in just four months, and
  • awarded an exciting gene therapy proof of concept collaboration between one of the world’s leading 4H
    experts and leading gene therapy experts.


Benefits Offered by The Yaya Foundation

  • Flexible Work Hours: Part-time employee working 30 hours/week
  • Compensation: $60,000 – $70,000, pending experience
  • Open Paid Time Off Policy: The Yaya Foundation is a lean organization staffed by people who are
    dedicated to advancing our mission. The Advancement Advisor role is eligible for up to 8 days of paid
    time off per calendar year and can take as many unpaid personal days as they need, subject to the
    following expectations:

    • Advance notice to the Executive Director is expected for planned days off lasting up to 5 days.
    • Employees should notify the Executive Director of any unexpected days off as soon as possible.
    • Employees requesting more than 5 days off at a time need written approval from the Executive
    • No specific amount of time off is guaranteed, vested, or accrued.
    • The Yaya Foundation expects all employees to maintain excellent performance toward
      advancing the organization’s mission. If performance declines because of use or abuse of the
      PTO policy, The Yaya Foundation reserves the right to review an employee’s use of PTO and
      take disciplinary action if necessary, up to and including termination of employment.
  • Location: Remote; must be authorized to work in the United States. Foundation leadership based in
    Minneapolis, MN and Boston, MA.


To Apply:

Interested candidates should apply by submitting a resume and cover letter expressing your interest and fit for
the role to impact@yayafoundation4hl.org with “Yaya Foundation Advancement Advisor” in the subject line by
January 21st.

Applications will be reviewed, and upon qualification, we will contact you to determine next steps. The Yaya
Foundation is committed to providing equal employment opportunities to all qualified individuals and does not
discriminate on the basis of race, color, ethnicity, religion, sex, gender, gender identity and expression, sexual
orientation, national origin, disability, age, marital status, veteran status, pregnancy, parental status, genetic
information or characteristics (or those of a family member) or any other basis prohibited by applicable law.