4HL Family Call with Nicole Wolf

In this video, Dr. Nicole Wolf, a leading expert on 4H Leukodystrophy, talks to our community of #4HLFamilies. She discusses the trajectory of where we started, the milestones we’ve met, and the investigative directions in progress. Dr. Wolf explains where  this ultra-rare disease falls in the context of normal development and describes the range of what 4H Leukodystrophy can look like in our kids as they grow. She also highlights the importance of data collection efforts and registries to support future treatment discoveries. In this conversational, families spend the second half of the video asking Dr. Wolf questions.