In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians, and the Yaya Foundation attended in-person and virtually.
In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.
Learn More >>We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.
So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.
We won’t stop until we find a treatment and, ultimately, a cure.
Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.
