ULF Conference – 4H Leukodystrophy and Disorders: Natural History Study / Dr. Bernard

In June 2022, the Yaya Foundation for 4H Leukodystrophy sponsored several 4H-specific presentations at the United Leukodystrophy Conference in Chicago, IL. Several affected families, a variety of researchers and clinicians, and the Yaya Foundation attended in-person and virtually.

In this segment of the Yaya Foundation conference, Doctor Genevieve Bernard discusses the natural history study of POLR3-related (4H) Leukodystrophy disorders.

Posted Under: Video

4H Leukodystrophy
Research

In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.

Learn More >>

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

DONATE

Yaya Foundation

ULF Conference – 4H Leukodystrophy and Disorders: Natural History Study / Dr. Bernard

Posted Under: Video

4H Leukodystrophy Research

4H Leukodystrophy
Research