In the Opening of Virtual Care & Disease Management Day, hosted by the Yaya Foundation, Ron Garber, Yaya’s dad and foundation co-founder, reflects on his daughter’s diagnosis, the journey of the foundation, and the vision for the future with families and individuals affected by 4H Leukodystrophy.
The care and disease management conference was hosted live on Friday, April 22, 2022
In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.
Learn More >>We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.
So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.
We won’t stop until we find a treatment and, ultimately, a cure.
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