Accelerating discovery and driving hope for

4h leukodystrophy

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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News & Stories

February 5, 2025

Yaya Community, Since its founding over 6 years ago, the Yaya Foundation has been committed to both the innovation of research AND the support for patients and families. Over the…

December 6, 2023

Season’s Greetings! Since I first stepped into this role in March, I have continued to feel that the wind is at our back, and my conviction remains. A celebratory year…

November 20, 2023

Yaya Foundation is happy to announce that presentations from the 2023 Family & Scientific Conference are now live on our youtube page! You can access the full playlist below and…