Dr. Camille Wilson and Dr. Josh Bonkowsky joined the #4HL Family Call this month. Dr. Wilson talked about neuropsychology and how it can be an important and helpful tool in helping children as they navigate school and daily life. Dr. Bonkowsky gave an update on the recent approval for an ICD-10 code for 4H Leukodystrophy, which will make it much easier to track individuals diagnosed with 4H Leukodystrophy across the United States and around the world.
In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.
Learn More >>We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.
So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.
We won’t stop until we find a treatment and, ultimately, a cure.
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