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Research Initiatives

The Yaya Foundation is driving research forward through the thoughtful curation of relevant research and clinical studies in our Research Library, harnessing the potential of patient registry data through our Data Collection initiative and mobilizing experts across disciplines to connect and expand who is fighting for our children.

Research Library

Patient Data Collection Program

4H Leukodystrophy researchers

Tips For Reading Scientific Papers

Research Roadmap

Leukodystrophies Diagnosis and Treatment Webinar

4H Leukodystrophy
Research

In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.

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Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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