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Jamie and Layla Ride for Life
April 30, 2022 @ 9:00 am - 10:30 am
A Family Ride to End 4H Leukodystrophy
Oak Tree area to Green Springs and Back on Spring-to-Spring Trail
Open to All Ages / Water and Snacks Provided / Games for the Kids
Meet my two granddaughters, Jamie Rae and Layla Grace Alacan who are battling 4H Leukodystrophy. Their mother Courtney describes them as her warrior babies, and I could not agree more. I hope by doing this event many more people will join the fight against this terrible neurological disorder. –Eddie Alacan
4H leukodystrophy is a genetic disorder that causes a lack of myelin, the fatty white substance that covers and protects nerve cells in the central nervous system. The missing myelin causes problems with balance and walking, tremors, speech difficulties, uncontrolled muscle contractions, stiff muscles, and restricted movements. Other symptoms include abnormal tooth development, atypical puberty, short stature, and near sightedness.
THERE IS NO CURE. HELP US FUND RESEARCH!
Adults $25 and $100 in pledges from supporters
Children are free
Register at ULF.org or on-site April 30
Learn more by contacting Eddie Alacan
firstname.lastname@example.org or 386-960-4393
Supported by the United Leukodystrophy Foundation