All meeting sessions will be virtually
The Yaya Foundation is proud to announce its upcoming 4H Leukodystrophy Virtual Care & Disease Management Day on Friday, April 22, 2022.
Based on input from many individuals and families affected by 4H Leukodystrophy, conference topics will focus on Supportive Care & Disease Management. The Foundation collaborated closely with leading 4H Clinician Scientist, Dr Genevieve Bernard, to identify speakers and finalize the agenda.
The benefits of attending this free, virtual conference include:
We look forward to bringing individuals and families affected by 4H together with leading specialty clinicians who have cared for 4H patients. Our goal is to safely include as many families as possible. To achieve that, the Virtual Care & Disease Management Day will be delivered virtually. The conference agenda will also allow opportunities for the 4H community to connect.
Please register today! We think this will be an amazing day together!
In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.Learn More >>
We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.
So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.
We won’t stop until we find a treatment and, ultimately, a cure.
Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.