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Virtual Care & Disease Management Day


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Virtual Care & Disease Management Day

Fri Apr 22

Virtual Care & Disease Management Day
April 22, 2022

All meeting sessions will be virtually

Please join us for this free virtual conference

The Yaya Foundation is proud to announce its upcoming 4H Leukodystrophy Virtual Care & Disease Management Day on Friday, April 22, 2022.

Based on input from many individuals and families affected by 4H Leukodystrophy, conference topics will focus on Supportive Care & Disease Management. The Foundation collaborated closely with leading 4H Clinician Scientist, Dr Genevieve Bernard, to identify speakers and finalize the agenda.

The benefits of attending this free, virtual conference include:

  • Receiving expert care guidance from clinicians who have cared for patients with 4H leukodystrophy
  • The ability to participate in Q&A with the clinicians
  • Multiple opportunities to connect with other families in smaller virtual setting

We look forward to bringing individuals and families affected by 4H together with leading specialty clinicians who have cared for 4H patients. Our goal is to safely include as many families as possible. To achieve that, the Virtual Care & Disease Management Day will be delivered virtually. The conference agenda will also allow opportunities for the 4H community to connect.

Please register today! We think this will be an amazing day together!


Thank You To Our Sponsors!



Fri Apr 22
Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.