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Jamie and Layla Ride for Life
Jamie and Layla Ride for Life
Join us on a family bike ride to help end 4H Leukodystrophy. We will be biking from Oak Tree area to Green Springs and Back on Spring-to-Spring Trail to raise money and awareness.
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Calendar of Events
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Data Collection Info Session
Data Collection Info Session
Want to learn more about the 4H Data Collection Program? Join us for an info session on Friday, May 13th co-hosted by the Yaya Foundation and Rare-X, the data collection platform. Whether you're 1 of 60 families already enrolled or are thinking about participating, we look forward to answering all of your questions - big...
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Zoom Hangout for #4HLFamilies
Zoom Hangout for #4HLFamilies
The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics,...