Frequently Asked Questions

Right now, you might feel like you have more questions than there could ever be answers. We’re here to help with answers to some of the most commonly asked questions by families affected by 4H Leukodystrophy.

Remember—you’re not alone at any point on this journey. We’re on hand to provide any answers or support that you don’t find here. Just reach out.

What is 4H Leukodystrophy?

4H Leukodystrophy (4HL) belongs to a larger group of conditions called leukodystrophies. These diseases affect the white matter of the brain and damage the myelin sheath, which surrounds and protects the nerve cells in the brain and spinal cord and assists with transmission of messages between cells. Hypomyelination is a common sign of a leukodystrophy, and this means that the body is unable to produce these myelin sheaths at normal levels. In 4H Leukodystrophy, symptoms of hypomyelination, hypodontia, and hypogonadotropic hypogonadism (the 4Hs) are usually present.

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