Category: Video

June 2, 2021

Dr Nicole Wolf, 4H Leukodystrophy specialist and rare disease expert, speaks about data collection and patient registries: what they are used for, how they benefit patients, how data are collected…

April 30, 2021

Dr Alessandro Vannini about the importance of collaboration at the Yaya Foundation for Leukodystrophy collaborative network seminar on April 15, 2021. <iframe width=”560″ height=”315″ src=”https://www.youtube.com/embed/KvaJlD_XJME” title=”YouTube video player” frameborder=”0″ allow=”accelerometer;…