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Virtual Care & Disease Management Day

Virtual Care & Disease Management Day April 22, 2022 All meeting sessions will be virtually Please join us for this free virtual conference The Yaya Foundation is proud to announce its upcoming 4H Leukodystrophy Virtual Care & Disease Management Day on Friday, April 22, 2022. Based on input from many individuals and families affected by...

Jamie and Layla Ride for Life

Spring-To-Spring Trail, DeBary, FL 32713 Spring-To-Spring Trail, DeBary, FL 32713, DeBary, FL, United States

Join us on a family bike ride to help end 4H Leukodystrophy. We will be biking from Oak Tree area to Green Springs and Back on Spring-to-Spring Trail to raise money and awareness.

Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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