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Ride for a Cure

Florida , United States

Ride for A Cure: Florida Motorcycle Ride Fundraiser Grandfather Jim St. John is taking to the road on his motorcycle to raise awareness for 4H Leukodystrophy in honor of his...

YAYA FOUNDATION @ ULF CONFERENCE

Eaglewood Resort, Chicago IL 140 Nordic Road, Itaska, United States

Join us at the Eaglewood Resort and Spa , Chicago, Illinois. Sessions are available in-person and virtually. Yaya Foundation is honored to sponsor registration fees for 4H families. Use the code yaya4h...

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...

Fore for 4H Golf Event

Creekwood Golf Course 9691 Reed Road, Columbia Station, Ohio, United States

In its seventh year, Fore for 4H is a great day with friends playing golf, and enjoying live entertainment, BBQ, and raffles!

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...

4H Leukodystrophy
Research

In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.

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Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

DONATE