Join us on a family bike ride to help end 4H Leukodystrophy. We will be biking from Oak Tree area to Green Springs and Back on Spring-to-Spring Trail to raise money and awareness.
Want to learn more about the 4H Data Collection Program? Join us for an info session on Friday, May 13th co-hosted by the Yaya Foundation and Rare-X, the data collection...
The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...
Ride for A Cure: Florida Motorcycle Ride Fundraiser Grandfather Jim St. John is taking to the road on his motorcycle to raise awareness for 4H Leukodystrophy in honor of his...
Join us at the Eaglewood Resort and Spa , Chicago, Illinois. Sessions are available in-person and virtually. Yaya Foundation is honored to sponsor registration fees for 4H families. Use the code yaya4h...
The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...
In its seventh year, Fore for 4H is a great day with friends playing golf, and enjoying live entertainment, BBQ, and raffles!
The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...
The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya...
In everything we do, we’re working to speed progress toward a cure. Learn more about our ambitious research strategy.
Learn More >>We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.
So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.
We won’t stop until we find a treatment and, ultimately, a cure.
Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.
