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March 2022

Tue 22 Mar
montreal-children’s

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Tue 22 Mar
homewood-suites

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Test, PO Box 8670, Minneapolis, MN 55408 + Google Map

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April 2022

Sat 30 Apr

Jamie and Layla Ride for Life

Spring-To-Spring Trail, DeBary, FL 32713, Spring-To-Spring Trail, DeBary, FL 32713
DeBary, FL 32713 United States
+ Google Map

Join us on a family bike ride to help end 4H Leukodystrophy. We will be biking from Oak Tree area to Green Springs and Back on Spring-to-Spring Trail to raise money and awareness.

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May 2022

Fri 13 May

Data Collection Info Session

Via Zoom Link

Want to learn more about the 4H Data Collection Program? Join us for an info session on Friday, May 13th co-hosted by the Yaya Foundation and Rare-X, the data collection platform. Whether you're 1 of 60 families already enrolled or are thinking about participating, we look forward to answering all of your questions - big and small - and sharing what we've learned about trends that have showed up in the data so far! We'll discuss the purpose and benefits…

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Sun 22 May

Zoom Hangout for #4HLFamilies

Via Zoom Link

The Yaya Foundation hosts bi-monthly calls for anyone and everyone impacted by 4H or POLR3-related Leukodystrophy. Along with keeping the community up-to-speed on the work we’re doing at the Yaya Foundation, we also strive to organize valueable and engaging content for our family calls. This year, the Yaya Foundation is considering several unique meeting topics, including visits from expert guests. If you have additional ideas or want to be involved in the planning, please contact info@yayafoundation4hl.org. The #4HLFamilies Zoom Hangouts…

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Our Ethos

We are driven by the dream that one day, every child with 4H Leukodystrophy will have the chance to live a long, healthy life.

So we fight for these children by acting as a catalyst and a connector—bringing researchers together to accelerate the pace of discovery, while connecting families with vital education resources and emotional support.

We won’t stop until we find a treatment and, ultimately, a cure.

about yaya foundation

Give Hope to a Child with 4H Leukodystrophy

Your generous donation funds critical research into life-changing treatments and a cure for 4H Leukodystrophy, as well as vital programs that connect, support and empower families affected by this rare disease. All it takes is a simple click.

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